The Liddy Shriver Sarcoma Initiative helping those dealing with sarcoma.                      HOME

Home
Liddy's Story
Sarcomas
Clinical Trials
ESUN
Funded Research
Sarcoma Calendar
Initiatives
Personal Journeys
Links
News
Donations
Volunteer
First Time Visitors
Searching Our Website
Guest Book
Link Resources
Cancer Organizations
Centers/Hospitals
Clinical Trials
Dictionaries
Drug Information
General Resources
Protocols
Research
Sarcoma Communities
Support Groups

Research
Cancer Research Organizations and Journals

 

There are many people who want to do research on their disease or that of a loved one or friend to help them understand the nature of the disease, its progression and the various treatment options that are available to them. The Research webpage contains descriptions of various cancer research organizations and related journals that are typically intended for the medical professional.

Steve Dunn's CancerGuide provides is a very useful starting point for undertaking investigations into cancer and cancer-related issues. Among other things, he discusses how to research the medical literature and how to use and access medical databases and online resources.  He explains the medical research cycle, where to get medical references and describes the various types of papers in the medical literature, and how to find and use a medical library.

Investigations into cancer and cancer-related issues can be conducted on a number of our webpages. For example, locating clinical trials cane be done using sites on the Clinical Trials webpage and investigations into various types of sarcoma can be done on some of the sites on the Sarcoma Communities webpage. And, many of the sites on the General Resources webpage have extensive information related to a wide variety of cancers, including sarcomas.

 

American Association for Cancer Research (AACR)

AARC’s mission is to “prevent and cure cancer through research, education, and communication”. It fosters research in cancer and related biomedical science, promotes science education, and works to advance the understanding of cancer prevention, diagnosis, and treatment throughout the world. To aid in the dissemination of new cancer-related findings, it publishes six journals: AACR Journal Highlights, Cancer Research, Clinical Cancer Research, Molecular Cancer Therapeutics, Molecular Cancer Research, and Cancer Epidemiology Biomarkers & Prevention. The archives of a previously published journal, Cell Growth & Differentiation, are online. Cancer Research is the most frequently cited cancer journal in the world, with over 90,000 citations per year. AARC’s website has an advanced search capability that lets the user search any or all of the above journals.

 

American Society of Clinical Oncology (ASCO)

The American Society of Clinical Oncology (ASCO) is a leading professional organization representing physicians who treat people with cancer. ASCO’s members develop standards for patient care and lead the fight in the United States for more effective cancer treatments, increased funding for research aimed at finding cures for the many different types of cancers, including sarcomas. The ASCO site has a detailed calendar of events of important oncology-related meetings around the world. One can search ASCO's comprehensive database of abstracts. In fact, its Knowledge Center allows you to search a variety of different ASCO resources, including its abstract database. ASCO’s Journal of Clinical Oncology is discussed in a separate entry, below. ACSO develops clinical practice guidelines for doctors that outline appropriate methods of treatment and care.

 

Annals of Surgical Oncology (ASO)

The Annals of Surgical Oncology is the official journal of the Society of Surgical Oncology (see entry below). The Annals publishes original and educational manuscripts about oncology for surgeons from all specialties in academic and community settings. Users of the site without a subscription have access to a Tables of Contents and Abstracts via its advanced search facility.  If you wish to view a full-text article without a subscription, you may purchase access to it for 24 hours at a cost of $20.00 per article.

 

BC Cancer Agency Chemotherapy Protocols

The British Columbia Cancer Agency’s listing of chemotherapy protocols for Sarcoma treatment. Each listed protocol gives detailed information regarding eligibility and testing for that protocol, dosing levels for pre-medications and chemotherapy agents, and dose modifications for various toxicities.

 

BMJ (formerly the British Medical Journal)

The BMJ, formerly known as the British Medical Journal, aims to publish rigorous, accessible and entertaining material that will help doctors and medical students in their daily practice, lifelong learning and career development. BMJ seeks to be at the forefront of the international debate on health. It publishes original scientific studies, reviews and educational articles, and papers commenting on the clinical, scientific, social, political, and economic factors affecting health. This website contains an excellent search facility and the full text of all articles published in the weekly BMJ since January 1994. Currently access to the entire site is free. Its NetPrint subweb contains articles that “have not yet been accepted for publication by a peer reviewed journal. They are presented here mainly for the benefit of fellow researchers. Casual readers should not act on their findings, and journalists should be wary of reporting them.”

 

CA: A Cancer Journal for Clinicians

CA is a peer-reviewed journal of the American Cancer Society (ACS) which provides cancer care professionals with information on all aspects of cancer diagnosis, treatment, and prevention. The ASC states that, “CA is the most widely circulated oncology journal in the world, mailing to over 100,000 individuals”. Recently, the ISI Journal Citation Reports showed that “CA is the #1 cited oncology journal out of 114 journals listed in the category of oncology”. The CA website has an advanced search capability allowing its content to be searched for full text (January 1990 – present), abstracts only (January 1979 - November 1989), and tables of contents only (July 1965 - November 1978).

 

Connective Tissue Oncology Society (CTOS)

CTOS is an international group comprised of physicians and scientists with a primary interest in the tumors of connective tissues. The goal of the society is to advance the care of patients with connective tissue tumors and to increase knowledge of all aspects of the biology of these tumors, including basic and clinical research.  Their site contains the papers, posters, and oral presentations submitted at their annual meeting. There is a link to Sarcoma, a journal dedicated to publishing papers covering all aspects of connective tissue oncology research, on their links page. Sarcoma brings together work from scientists and clinicians carrying out a broad range of research in this field, including the basic sciences, molecular biology and pathology and the clinical sciences of epidemiology, surgery, radiotherapy and chemotherapy. Users can browse the contents pages of Sarcoma online issues free of charge. Accessing the full text of journal documents may require e-mailing the publisher.

 

Journal of Clinical Oncology (JCO)

This is the official journal of the American Society of Clinical Oncology (ASCO, see entry, above).  Individual (non-ASCO member) subscribers to the journal have online access to: tables of contents, abstracts, full text searching, full text display, document delivery, PDFs, links to Medline and GenBank, future tables of contents, and the advantage of having password access to JCO. JCO also has a subweb for Early Release” articles, which they characterize as an article that is “expected to have a substantial and immediate impact on clinical practice.”  You can also sign up for e-mail alerts, and access articles via pay-per-view mechanism at the JCO website.

 

Journal of Neurology, Neurosurgery and Psychiatry (JNNP)

The Journal of Neurology, Neurosurgery, & Psychiatry (JNNP) publishes important papers covering the whole field of clinical neurological practice. Emphasis is given to common disorders such as cerebrovascular disease, multiple sclerosis, Parkinson's disease, peripheral neuropathy, epilepsy, subarachnoid hemorrhage, including papers concerning pathogenesis and treatment.  It has an advanced search facility. It has a listing of the most recent 10 Most-Frequently-Read Contents. Subscribers have additional access to full text and PDF files of articles.  Non-subscribers have access to all tables of contents, all abstracts, free back archive of materials more than 12 months old, full text of "Editor’s Choice" for the current issue and email alerts.

 

National Center for Biotechnology Information (NCBI, PubMed, Entrez)

NCBI is part of NIH’s National Library of Medicine (NLM, see next entry). The NCBI website has, among other things, an extensive collection of databases. Through its PubMed Central (PMC) search facility you can access the National Library of Medicine's entire digital archive of life sciences journal literature, which includes may cancer-related titles. Access to the full text of articles in PMC is free, except where a journal requires a subscription for access to recent articles.  The complete set of NCBI databases can be searched through its Entrez search facility.

 

National Library of Medicine (MEDLINE, MEDLINE Plus, and other links)

The US National Library of Medicine (NLM) is a service of the National Institutes of Health (NIH), and is the world’s largest medical library.  MEDLINE is one of NLM's premier bibliographic databases covering the fields of medicine, nursing, dentistry, veterinary medicine, the health care system, and the preclinical sciences. It contains bibliographic citations and author abstracts from more than 4,600 biomedical journals published in the United States and 70 other countries.  The database contains over 12 million citations dating back to the mid-1960s. Coverage is worldwide, but most records are from English-language sources or have English abstracts. MEDLINEplus has extensive information from over 650 diseases and conditions and includes an extensive Medical Encyclopedia and Medical Dictionary. The website also lists hospitals and physicians, health information in Spanish, extensive information on prescription and nonprescription drugs, health information from the media, and links to thousands of clinical trials.

 

National Center for Complementary and Alternative Medicine (NCCAM)

The National Center for Complementary and Alternative Medicine (NCCAM) is one of the centers that make up the National Institutes of Health (NIH). The NCCAM is dedicated to exploring complementary and alternative healing practices in the context of rigorous science, training complementary and alternative medicine (CAM) researchers, and disseminating authoritative information to the public and professionals. On the NCCAM Health Information subweb, you can find general information about understanding complementary and alternative treatments, more specific information about the various complementary and alternative treatments available, as well as alerts and advisories, and information about dietary supplements. One can also search for complementary and alternative medicine clinical trials by treatment or therapy or by disease or condition.

 

NIH's Office of Rare Diseases (ORD)

The National Institutes of Health’s Office of Rare Diseases was created in 1993 for the purpose of stimulating and coordinating research on, and to respond to the needs of patients who have any one of the more than 6,000 rare diseases known today.  A “rare disease” is a disease or condition affecting fewer than 200,000 persons. The ORD site provides information about ORD-sponsored scientific activities, includes a genetic and rare diseases information center, and acts as a portal to databases that provide information on major topics of interest in rare diseases research. The site also contains a list of names of more than 6,000 rare diseases and related conditions with links to select government databases, and additional links to patient support groups. Also see the National Organization for Rare Disorders (NORD).

 

PathologyOutlines.com

This site provides access to, among other things, surgical pathology outlines with links to journal articles, gross and microscopic images, and conferences.

 

National Comprehensive Cancer Network (NCCN)

NCCN, formed in 1995, is an alliance of leading cancer centers that, among other things, seeks to “advance the state of the art in cancer prevention, screening, diagnosis and treatment through excellence in basic and clinical research.”  The programs sponsored by NCCN include: (1) The NCCN Practice Guidelines in Oncology which are “the recognized standard reference for appropriate practice in the field of oncology” and (2) The NCCN Outcomes Database wherein it integrates its guideline development process with a comprehensive data collection process “to measure the level of adherence of practice to NCCN Guidelines and the clinical outcomes that patients achieve at NCCN institutions.”  Click here to access NCCN’s complete list of Practice Guidelines. Note that there is a Practice Guideline for Sarcoma.  The NCCN website also has detailed clinical trial information for its member institutions.

 

NCI's Physician Data Query (PDQ)

PDQ is part of the National Cancer Institute’s website. The PDQ section of NCI's website allows you to search the NCI’s comprehensive databases that contain information about cancer treatment, screening, prevention, genetics, supportive care, and clinical trials.  Each cancer is listed alphabetically and cancer information summaries for adult treatment, pediatric, supportive care, prevention, genetics, complementary and alternative medicine.

 

QuackWatch

QuackWatch is a nonprofit corporation whose purpose is to combat health-related frauds, myths, fads, and fallacies. Its primary focus is on quackery-related information that is difficult or impossible to get elsewhere. Founded by Dr. Stephen Barrett in 1969, it has developed a worldwide network of volunteers and expert advisors.  Its activities include: investigating questionable claims; answering inquiries; distributing reliable publications; reporting illegal marketing; generating consumer-protection lawsuits; improving the quality of health information on the Internet; and attacking misleading advertising on the Internet.  An important site for anyone considering alternative treatments; follow its link to: Cancer: Questionable Therapies.

 

Society of Surgical Oncology (SSO)

The mission of the Society of Surgical Oncology is to, “ensure that all cancer patients receive the highest quality, comprehensive, multimodal cancer care.” In addition to the Annals of Surgical Oncology (see entry, above), SSO maintains a (partially) annotated set of bibliographies on various diseases.  Click here to read the Soft Tissue Sarcoma bibliography.

 

State of the Art Oncology in Europe (START)

START is a project launched by Cancerworld.org. It involves approximately 170 leading European oncologists.  The objective is to maintain a concise database on state-of-the-art treatment of human malignant tumors.  Therefore, START will contain as many chapters as there are human tumors. There is both a Professional Area and a Public Area. The professional area has chapters on Ewing’s Sarcoma, Osteosarcoma, and Soft Tissue Sarcoma and the public area is under construction.  Other clinical topics, important for oncological practice, (e.g. pain therapy, nutritional support, practical pharmacology, cancer screening, etc.) will also be included.  Among other things, START's sarcoma site contains general information, pathology and biology, diagnosis, staging, prognosis, treatment, and follow-up information for soft tissue sarcomas.

 

The Lancet

The Lancet is a medical journal published in the United Kingdom. Registration to this online version is free and provides search and access to selected full-text articles and news items, and pay-per-view article access. Registration also provides the ability to search and access articles in The Lancet Oncology, a separate, specialized edition of the Lancet.  A paid subscription to the Lancet provides access to the entire web site and full-text content, and a year's issues of the print journal.

 

The New England Journal of Medicine (NEJM)

The New England Journal of Medicine (NEJM) is a weekly general medical journal that publishes new medical research findings, review articles, and editorial opinion on a wide variety of topics of importance to biomedical science and clinical practice.  Material is published with an emphasis on internal medicine and specialty areas including oncology.  NEJM Online contains both the current issue and an online archive that can be accessed through browsing, advanced searching, or collections by disease or topic. Subscriber services include PDA content access, PowerPoint downloads, and continuing medical education (CME)