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ESUN Index

December 2004

The Electronic Sarcoma Update Newsletter, Vol. 1, No. 6

 

The symbol, which appears throughout the articles in the ESUN newsletter, is a hyperlink that returns you to the table of contents, In This Issue.  Each of the words or phrases that are underlined in articles in ESUN are hyperlinks to websites, documents or articles. The hyperlinks were valid when the specific issue of ESUN was published. If you find any broken links, please send us a note about them. The document hyperlinks typically open PDF documents, so you should have the Adobe Acrobat Reader installed on your system in order to read them.

 

In This Issue

Feature Articles

Editorial

Our first year comes to  a close.

Mesenchymal Chondrosarcoma

Dr. John Goldberg and Dr. Holcombe Grier give an informative introduction to one of the rarest sarcomas, mesenchymal chondrosarcoma. This is another in our series of Bridge Articles.

Adolescent and Young Adult Cancer Care

Dr. Karen Albritton discusses the special needs of adolescents and young adults with cancer.

Guidelines for Patients and Caregivers

Dr. Murray Brennan shares some of his insights to help patients and caregivers.

Living Well In Spite of Sarcoma

Louise Ladd, a survivor of GIST, shares her insights (with help from Carol Berres) on keeping joy in your life.

ACOR: A Quest

Truus van der Spek, a native of The Netherlands, describes her worldwide travels to meet people who supported her and her son during his journey with sarcoma.

Tissue Drive Status

Iqbal Ahmed gives abrief update on Dr. van de Rijn's leiomyosarcoma study at Stanford which was discussed in the last issue of ESUN.

Regular Columns

Q&A

Dr. Mary Louise Keohan addresses the question, "What is chemobrain?"

Our Initiatives

We're off to Cycle Zydeco again!

General Information

About ESUN

Disclaimer

Editorial Advisory Board and Editorial Staff

Registering to Receive Notifications About ESUN

Topics and Feedback

Disclaimer

Information in ESUN and on the The Initiative's website is provided on an "as is" basis for general information only.  It is not intended as medical advice and should not be relied upon as a substitute for consultations with qualified health professionals who are familiar with your individual medical needs.  We caution readers and internet users to take care when using “medical advice” obtained on the web or in newsletters such as this.  If you are concerned about your medical condition or that of a family member, loved one, or friend, consult a physician. Although we carefully review our content, The Initiative cannot guarantee nor take responsibility for the medical accuracy of documents we publish, nor can it assume any liability for the content of the various websites that we link to or that are linked to The Initiative's website.  We believe the information on our website and in ESUN provides you with a starting point for a discussion with your physician who can give you his/her opinion about it. 

About ESUN

ESUN, the Electronic Sarcoma Update Newsletter, is an electronic newsletter meant to serve the communities represented in the logo shown in the above masthead.  The logo represents sarcoma patients, their caregivers and loved ones, and the medical team working together for a common purpose—to improve the quality of life for those who have sarcoma.  The breaks in the links and between the links are meant to remind us of the difficulties in communicating and understanding that often occur among people.  The logo's background consists of the small round blue cells that identify a particular type of sarcoma, Ewing’s sarcoma, which is the one Liddy was battling.  To learn more about Liddy, see Liddy’s Story on our website. 

Topics and Feedback

Please send us your recommendations for topics that you would like to see covered in ESUN as well as any other comments or feedback that can be useful to us.  We also welcome contributions of essays and articles that are relevant to ESUN and its intended audience (see About ESUN, above).

Registering to Receive Notifications about the posting of ESUN 

Send us a note containing your e-mail address if you would like to receive a note when the next issue of ESUN is published.

 

V1N6 ESUN Copyright © 2004 Liddy Shriver Sarcoma Initiative.

 

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