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Our Initiatives The "Our Initiatives" column provides an update on some of the ongoing projects of the Liddy Shriver Sarcoma Initiative.
In this issue:
Team Sarcoma Event planning is underway as part of the 2008 Team Sarcoma Initiative The 2008 Team Sarcoma Initiative is an internationally coordinated set of events to raise awareness of sarcoma and raise funds to support sarcoma research, clinical trials, and patient and family services. The 2008 Initiative consists of the "core" Team Sarcoma Bike Tour (which will be held in Germany and Austria biking along the Danube River from Passau, Germany to Vienna, Austria during July 12-19, 2008) and various local Team Sarcoma events that will be held worldwide during the same week. The Team Sarcoma Initiative has become an International Sarcoma Awareness Week with over 3,400 people participating in it worldwide in 2007. While the members of the "core" Team Sarcoma are cycling along the Danube River, they will be joined by people participating in various local events in the cities and countries where they live on one or more of the days during July 12-20, 2008. People are in the process of planning Team Sarcoma events in various countries and States within the United States to be part of the 2008 Initiative. If you are interested in learning what's involved and forming one of the local Team Sarcomas, please contact us. In order to give the planners of local Team Sarcomas more flexibility in planning their activities, the official dates of the 2008 Team Sarcoma Initiative are July 12-20, 2008. Click here to learn more about the 2008 Team Sarcoma Initiative.
The Faces of Sarcoma Project As mentioned in the above article, the Team Sarcoma Initiative is an internationally coordinated set of events to raise public awareness of sarcoma and help raise funds to support sarcoma research. The mantra of the Team Sarcoma Initiative is "Sarcoma Knows No Borders". We use this phrase because sarcomas can occur anywhere in the body and they don't discriminate on age, gender, race or nationality (see article below). We have updated the video presentation "A Forgotten Cancer" which contains basic information about sarcoma and the Team Sarcoma Initiative. We are also producing a complementary video presentation called "The Faces of Sarcoma" which will contain photos of sarcoma patients and survivors and those who have lost their lives to sarcoma.
The early response to our request for photos to be included in "The Faces of Sarcoma" has been wonderful. Over 200 from over 30 countries and representing over 30 different subtypes of sarcoma have been sent to us. You can view these photos in a traditional "gallery" format until the video presentation is made by clicking here (click on a thumbnail to view a complete photograph). There is a search function in the lower left hand corner of each page.
Each person has furnished the photo, proof-read the caption, and agreed to let us include it in this project. If you would like to have your photo included Please send us a JPG of the photo that that you would like us to use as an attachment to your e-mail and not embedded in it. Higher resolution photos work better. Please complete the following caption: First name, age in photo, specific type of sarcoma, country. We should also mention that there are four additional translations of "A Forgotten Cancer" underway ― one in Turkish, Russian and Hebrew. When they are completed, “A Forgotten Cancer” presentation will have been translated into 11 languages. It now appears in English, Chinese, Dutch, French, German, Italian, Japanese, Polish, and Spanish and has been viewed thousands of times.
The "Sarcoma Knows No Borders" Bracelet We have received such an incredible response to the "Sarcoma Knows No Borders" bracelets, that we thought we should mention them again. We have received over 7,500 requests from all over the world for them. The background color of the bracelet is a swirl of a pathology slide of a sarcoma patient. The bracelet is reversible. "Sarcoma Knows No Borders" is printed on one side and the word "sarcoma" is printed in 13 of the world's languages on the other side. We use the phrase "Sarcoma Knows No Borders" because sarcomas can occur anywhere in the body and they don't discriminate on age, gender, race or nationality. Each bracelet is individually packaged and comes with a brief "Sarcoma Facts" sheet. Many boys and girls and teenagers wear them as an ankle bracelets. If you are interested in obtaining some of these bracelets, please click here. You might also want to read about our "Sarcoma Knows No Borders" ribbon by clicking here.
Three Photos of the "Sarcoma Knows No Borders" Bracelets Music CD, The Circle, Benefits Sarcoma Research Singer songwriter Ron Martin is a multi-instrumentalist from North Carolina. He is sharing the proceeds from the sale of his CD, The Circle, with the Liddy Shriver Sarcoma Initiative to help fund sarcoma awareness and research. The CD makes a very nice holiday, birthday, anniversary or graduation gift. Click here to find out more details.
Clinical trial abstracts now exceed 300 We have collected and summarized information on over 300 clinical trials that sarcoma patients may be eligible to participate in. Some of the trials are for specific sarcomas while others cover several sarcomas. Each trial has its own eligibility requirements. The data has been collected from sources in different countries. We have grouped the studies into three categories:
You can access any of these web pages by clicking one of the above links. Some hints for searching our clinical trial abstracts are found by clicking here.
If you haven't read the entries in our Guest Book recently, you may want to do so (please click here). We also invite you to make an entry (please click here).
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