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Sarcomas
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Clear Cell
Sarcoma
Clear cell
sarcoma (CCS),
also known as
melanoma of
soft parts
or melanoma of tendons and aponeuroses,
is a very rare malignant soft tissue tumor that affects all age ranges,
including young adults and children. Tendons and aponeuroses connect muscles to
bones, and this tumor often arises in those structures. It tends to present as a
mass in the lower extremities, usually occurs in the limbs, particularly around
the ankles. There are usually few symptoms until the lesion becomes large enough
to cause localized pain. Dr. John M. Goldberg and Dr Karen Albritton of Dana-Farber Cancer
Institute in
Boston have written and in-depth article,
Clear Cell Sarcoma and Alveolar Soft Part Sarcoma,
for our Electronic Sarcoma Update Newsletter (ESUN). Their article gives an
extensive set of references to articles dealing with these two diseases. We are
grateful to them for finding the time to undertake this project. Click on the
above link to view their article.
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Where else can you learn about CCS?
Steve Dunn's
CancerGuide provides a very useful starting point for
undertaking investigations into cancer and cancer-related issues
on the Internet. Among other things, he discusses how to
research the medical literature and how to use and access
medical databases and online resources. He explains the medical
research cycle, where to get medical references and describes
the various types of papers in the medical literature, and how
to find and use a medical library.
A word of caution: while the
Internet is a wonderful tool to gain access to information,
simply because information appears on the Internet does not
necessarily indicate that it is accurate or truthful. Any heath
information that you obtain on the internet should be reviewed
with your physician.
Interested readers are encouraged to continue
their understanding of angiosarcoma by examining the resources at the websites listed below:
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CCS
on The Doctor’s Doctor website
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Clear Cell Sarcoma of the Kidney
on the eMedicine website
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Clear Cell Sarcoma
on the Rare & Pediatric Cancer
Support website
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 Research
Funding
The Liddy Shriver Sarcoma Initiative is helping fund a vaccine study
at the Dana-Farber Cancer Institute that deals, in part, with CCS. See our
Funded Research webpage for
more details.
Online
Support Groups
We are not aware of any online support groups for those dealing with
CCS. If you are aware of a support group. could you please
contact us and give us the details?
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